Geared toward boosting “the nation's capacity to efficiently conduct comparative clinical effectiveness research,” the Patient-Centered Outcomes Research Institute announced it will spend up to $68 million to support the development of an interoperable network of research networks.
Of the total amount, $56 million will go toward supporting up to eight new or existing clinical data research networks for 18 months. Goals include having the networks become capable of implementing clinical trials and having the capacity to conduct randomized and observational comparative-effectiveness studies using standardized data formats while engaging patients, health systems and clinicians in network governance and data use. (Awards for individual projects are limited to $7 million.) Another $12 million will be dedicated to supporting up to 18 new or existing “patient-powered” research networks consisting of patients with a single rare or common medical condition willing to participate in research and report data that can be shared with other network members. (Awards for individual projects would be limited to $1 million.)