Two federal organizations, the Agency for Healthcare Research and Quality and the CMS, have funded and published a guide to providers wanting to set up patient registries to improve the quality of care.
According to AHRQ, the 219-page handbook, Registries for Evaluating Patient Outcomes: A User's Guide, "represents a groundbreaking federal initiative to help researchers and others use patient registries to evaluate the real-life impact of healthcare treatments." It represents the work of 39 contributors from industry, academia and government, AHRQ said in a statement Wednesday.
"This registries guide is a milestone in our growing efforts to draw from medical practice and learn which treatments really work best," said HHS Secretary Mike Leavitt in the news statement. "If we can learn more systematically from the experience of millions of patients and clinicians in day-to-day practice, then we can discover more quickly which treatments are truly most effective, and for whom."